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26 09, 2015

New “gold standard” therapy for multiple myeloma?

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Last year at ASH, everyone was anticipating FDA approval of carfilzomib (Kyrpolis) and pomalidomide (Pomalyst). It felt a lot like it does now, expecting the first two myeloma related immunotherapies, elotuzumab and daratumumab, to be approved within the next six months. I remember several high profile myeloma specialists (the IMF's Dr. Durie and Dana-Farber's Dr.

5 06, 2014

Tomorrow’s Mayo Clinic visit is “the combo platter; the whole enchilada”

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No ASCO blockbusters.  Some significant data was presented.  But as I mentioned yesterday, nothing time sensitive.  So today I would like to write briefly about what could be a life changing meeting tomorrow at Mayo Clinic. OK, I'll admit it.  I'm apprehensive about my appointment with my new myeloma specialist, Dr. Roy.  My first impressions

29 05, 2014

Truck loaded and on our way!

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As I mentioned in a post on May 21, we have planned three moving days.  The first was a preliminary move to get needed tools, bedding and that sort of thing over to the new "fixer" on Fernandina Beach.  Today's is "the big one;" three strong guys and a big truck. And the third?  My

28 03, 2014

Great news! RVD is working again!

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It's an awesome Friday morning!  I'm both delighted and relieved.  Delighted that our University of Wisconsin basketball team won again last night, advancing to the NCAA Tournament's Elite Eight; the Badgers play Arizona Saturday to see which team will advance to the Final Four.  And I'm relieved to report even better news: I learned yesterday

24 03, 2014

Relapse review: What should Pat do next?

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I hadn't planned to write a follow up post about me today.  But I can tell from the flood of emails and comments I've been getting that some readers are concerned  I'm sitting back and not doing enough to battle my relapse. And there does seem to be some confusion about my treatment plan moving

13 03, 2014

Medical Update: no good news yet

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A month ago I wrote a post explaining why my doctors and I had agreed to give Revlimid one more shot before moving on to a new therapy: RVD; do your magic one more time!   It's now been almost six weeks, and I have the first SPEP results since my radiation oncologist discovered several

2 02, 2013


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Our very own Myeloma Cinderella explores one of the four or five key controversial questions about myeloma therapy strategies this weekend: whether to use the newest and best drugs up-front, or keep them in reserve for relapse. The title of her column leaves no doubt about how suzierose feels: MYELOMA CINDERELLA: "NO ROLE FOR KEEPING

7 01, 2013

Pat’s medical “State of the Union” for 2013

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Two weeks ago I referenced a visit I had with my myeloma specialist, Dr. Melissa Alsina at Moffitt Cancer Center in Tampa.  But I never followed-up with any details.  The President makes a State of the Union speech each year in January.  Without nearly as much pomp and circumstance, here's an update on my current

14 12, 2012

Medical Update: How I’m doing post-ASH

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ASH is the largest hematological conference in the world.  More myeloma related research results are published and presented at ASH than at any other time.  But most of the information there isn't time sensitive.  As I may have already mentioned, I can see progress being made.  But in small, incremental steps.  So I'm going to

19 07, 2012

“How do I feel?” Depends on the day!

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A reader emailed me and asked, "How do you feel?"  My response: "It depends on the day." I started writing this piece Wednesday evening.  All things considered, it could always be a lot worse!  But Wednesday's are infusion day.  Velcade, Revlimid and dexamethasone, all rolled-into one fun-fulled night. It starts with my sub-q Velcade injection

1 06, 2012

Medical Update: Everything is harder after my stem cell transplant (SCT)

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  It has now been eleven months since my stem cells were infused back into my body, following high dose chemo on July 1st last year. I actually felt better three or four months out than I do now.  That’s because I hadn’t started RVD (Revlimid/Velcade/dexamethasone) consolidation therapy yet.  My oncologists started hitting me hard

27 03, 2012

Treat multiple myeloma like it’s a marathon–not a sprint!

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The Myeloma Beacon's Virginia Li wrote an interesting report late last week, highlighting how "more is not necessarily better" when it comes to myeloma therapy. Here is the first part of her article: Among Velcade-Based Combinations, Four-Drug Combo Is Not More Effective Than Similar Three-Drug Combos For Newly Diagnosed Multiple Myeloma The results of a