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23 07, 2013

Best video I’ve ever watched about MDS

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Myelodysplastic syndrome (MDS) results in the bone marrow not producing enough normal blood cells for the body to function properly.  It isn't unusual for multiple myeloma patients to develop MDS after undergoing years of chemotherapy.  I just watched the best video I've ever seen on this rare hematological disorder--and I'm not just saying that because

25 04, 2013

Is it reasonable to delay transplant? YES! But myeloma establishment doesn’t agree

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A reader emailed me yesterday and asked how many subscribers/readers I have.  I responded, "We are currently averaging between 1,200-1,300 page views daily."  That translates into between 500-600 daily readers, best I can tell.  April 5th I wrote a "catch-all" post that blows these numbers away.  Almost 2,300 people have read this post in less

26 01, 2013

Myeloma Cinderella: Disease vs Therapy (Part One)

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After a couple days change of pace, time to return to "myeloma 101."  Except suzierose's column this week is very technical--more graduate school level.  But don't let that detour you!  This weekend our very own Myeloma Cinderella finds more morsels of hope for high risk multiple myeloma patients:   Part One of Disease vs Therapy

1 06, 2012

Medical Update: Everything is harder after my stem cell transplant (SCT)

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  It has now been eleven months since my stem cells were infused back into my body, following high dose chemo on July 1st last year. I actually felt better three or four months out than I do now.  That’s because I hadn’t started RVD (Revlimid/Velcade/dexamethasone) consolidation therapy yet.  My oncologists started hitting me hard