Two weeks ago I ran part one of Danny Parker's column, Thoughts from the Edge of Relapse. I was waiting for Danny pass along his latest test results. Did RVD (Revlimid/Velcade/dexamethasone) do the trick? Was it able to vanquish his wakening multiple myeloma before it picks up a head of steam? Here's Part Two: My
I reference my M-spike often. Some cancers don't have good blood markers. But doctors can reliably monitor the progression of multiple myeloma in the majority of patients by tracking how much monoclonal protein is floating around in their blood or urine, using a serum protein electropheresis (SPEP) test. A pathologist reads a graph of the
Dexamethasone may be slowly destroying my body, but for three days a week, I love it! There are actually a lot of closet dexamethasone fans out there. I hear from them regularly. They almost always suffer from significant bone involvement (bone damage) caused by their multiple myeloma. Sure, I get an energy boost after taking
"How am I doing?" I'm often asked; by email, in person or on the phone. Here's an update. Dr. Malhotra is now running a SPEP test (measures my M-spike) every two weeks. This week's results: I remained at a steady 0.4, same as the last test that had dropped from 0.5 the month before. I'm
Yesterday I closed my post with this cryptic statement: I was going to share the news about my visit with my myeloma specialist, Dr. Alsina today. I will get to that tomorrow. No tease–the news was sort of no news at all. Let’s just say I’m sentenced to a life of perpetual post SCT chemo.
Last week I drove the one+ hours south to Moffitt Cancer Center for my official three month blood draw. Although my local medical oncologist had my M-protein tested a month back--and it showed no remaining M-spike--the in-house lab and on-site pathologist at Moffitt has been my primary source for lab work done since I moved
I wanted to keep those of you who kindly follow my site updated on my medical journey. As you have probably guessed, I would rather write about myeloma news and medical advances, tips for newly diagnosed patients and the like then to write about me. But I can see by how
Last Wednesday, Californian Lori Puente stopped-in to visit our Nature Coast (Florida) Multiple Myeloma Support Group meeting and Christmas party. Her husband, Dave (the patient), was unable to attend because he was fighting a cold. Lori writes an excellent caregivers blog called Riding The Wave. She is a tireless advocate for the UAMS/Arkansas myeloma treatment