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support groups

Home/Tag:support groups
13 08, 2015

More about daratumumab, followed by Pat’s medical update

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Before I write about how I'm been doing the past day or two, here's the mainstream Florida's media's perception of yesterday's feature, daratumumab: Multiple myeloma sufferers given new hope with 'wonder drug' August 12, 2015 – 693 NewsTalk, Melbourne, Australia      A breakthrough drug is providing "unprecedented results" and giving new hope for patients with a rare

15 01, 2014

Patient Snapshot: Howard Martinson

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In a tragic yet ironic twist, my dear friend and multiple myeloma survivor, Howard Martinson, unexpectedly lost his beloved wife and caregiver last year. Teresa was an amazing woman.  But an innocent sinus infection somehow became unstoppable; she died last fall with Howard at her side. I hadn't heard from Howard for a while, so

5 11, 2013

Live in Central Florida? Drop by and meet me today!

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The Villages.  Billed as "Florida's friendliest hometown," The Villages is one of the largest retirement community in the world.  I'm speaking to a newly formed multiple myeloma support group there today at 1 PM. According to the website, What started as a small neighborhood in 1978 has blossomed into a sprawling community that will

7 08, 2013

Another example of a myeloma survivor giving back

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I met Jim Byrd a year or so ago when I traveled to Columbia, South Carolina to speak to a large group there.  A four year survivor, Jim and I have met several times since.  He's a great guy; quiet and determined, yet always wearing just a hint of a smile. Jim helped get a

19 06, 2013

Myeloma Updates: Durie/Novis insight & support group shout-out

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I have several different items to share with you today.  First, I have been saving a link to an in-depth article OncLive ran a week ago about the International Myeloma Foundation's power couple, Dr. Brian Durie and Susie Novis.  The article features fascinating personal insights, most of which were new to me; and I know

15 05, 2013

Nationwide myeloma support group broadcast tonight

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Tonight I'm taking part in an experiment.  With the help of Priya Menon and the team at Cure Talk, we will be launching an on-air, nationwide multiple myeloma support group. The broadcast will begin at 6 PM Eastern time.  Due to a scheduling snafu, it happens to air at the same time my local support

13 05, 2013

What happens if your caregiver can’t help anymore?

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70% of multiple myeloma patients are over 70 years old.  So it isn't unreasonable to anticipate that a wife or husband--currently acting as caregiver--might be blindsided by a serious medical setback themselves.  What then?  Do you have a contingency plan? That's the challenge my wife, Pattie, and I faced this past weekend.  Pattie has been

28 10, 2012

Old myeloma friends–and ways to make new ones!

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Multiple myeloma survivor, Joyce Schultz, contacted me on facebook to let me know that she is starting a new support group.  The group will meet in Fairmont, Minnesota, which is located in the southern part of the state.  AWESOME! I understand every patient and/or caregiver can't get to a support group.  There may not be

3 10, 2012

Meet me in Clearwater, Florida or Grand Rapids, Michigan

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October and November are busy travel months for me.  I will be flying all over the country, speaking to support groups and meeting with myeloma experts.  Maybe I can meet you, too! Nothing thrills me more than getting a chance to meet and answer questions from my fellow patients and their caregivers.  It's what I

3 08, 2012


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Yesterday I heard from dozens of readers, congratulating me on my positive test results. Our good friend and guest columnist, Danny Parker, contacted me, too.  Here’s part of what his congratulatory email had to say: “I take some credit for your remission, courtesy of supplements (that Danny suggested I use), along with Dr. Alsina's carpet

27 07, 2012

Support group shout-out!

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I never had a chance to thank the support group hosts from my trip to Los Angeles last weekend. Barbara Campbell, founder and leader of the El Segundo, California support group, was gracious and very knowledgeable.   We all sat in a circle and talked about our multiple myeloma experiences.  What a great group!  Only one

10 03, 2012

Every community large enough to support a stand-alone cancer clinic should also feature a multiple myeloma support group

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That's right.  Every cancer clinic of any size should help promote and sponsor a multiple myeloma support group.  Every one. The group doesn't need to meet at any particular clinic.  As a matter of fact, it is probably better that is doesn't.  That way myeloma patients and caregivers from a number of different facilities can

9 03, 2012

Second opinions are important. So are attending support groups and joining clinical trials…

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Wednesday I participated in a March is Myeloma Awareness Month even at the Watson Clinics in Lakeland, Florida. This is a large complex/campus which features three or more large buildings covering what looks to be six city blocks.  I spent several hours in a newer, two story building dedicated to oncology; the Center for Cancer

4 03, 2012

I will be speaking in South Carolina Tuesday

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I wanted to let everyone know that I will be speaking to a myeloma support group in Hilton Head, South Carolina, Tuesday, March 6th at 11:30 am. Here are the specifics: Truffles 91 Towne Drive Belfair Towne Village Bluffton, SC  29910 11:30 am - 12:30 PM I'm excited about the opportunity to meet more of