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16 04, 2010

Quick Update From Panama Beach, Florida Wedding

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Hello from sunny Panama Beach!  My best friend's wedding went off without a hitch this morning.  Beautiful, sunny weather.  A gorgeous bride, Lisa.  Delightful family and guests.  I was best man--and didn't lose the rings!  Everyone was bare foot and all are happy and sun burned.  Congratulations Tim and Lisa!  Tonight we will all meet

15 04, 2010

Multiple Myleloma Time Out!

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It's 7 am. Pattie and I are getting ready to head to northern Florida—the panhandle—for my best friend's wedding. My college roommate, Tim Hanna, is marrying a wonderful woman named Lisa. They have been seeing each other for several years now. Tim is the three term mayor of Appleton, Wisconsin, a small city of about

15 03, 2010

International Blogger Disects Smoldering Multiple Myeloma Study On Her Blog, Margaret’s Corner

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Here is a link to the first part of a two part analysis of a research study about smoldering myeloma I found on an excellent alternative medicine for multiple myeloma patients named Margaret's Corner:  Smoldering (asymptomatic) multiple myeloma: current diagnostic criteria, new predictors of outcome, and follow-up recommendations. Part I.  Margaret is not a fan of

7 01, 2010

FDA Allows Important Labeling Change For Multiple Myeloma Drug Velcade

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The Tokeda Oncology Company (Millennium) announced today that the U.S. Food and Drug Administration (FDA) has approved a supplemental new drug application for Velcade, which expandsthe label to include long-term (median follow-up 36.7 months) overall survival (OS) data from the landmark VISTA trial. What the heck does this mean and why is it important? I

18 12, 2009

Mostly Good News–And Guilt!

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Good news and bad news from yesterday's oncology appointment. First, the bad news. Two months ago, the pathologist noted he saw what might be just a shadow--a trace--of monoclonal protein in my blood work. In other words, after eighteen months, my myeloma might be back. Thursday I learned this was indeed the case. This time

17 12, 2009

Today Is The Day…

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I am getting ready to grab my coat and rush out the door for an appointment with my medical oncologist Dr. Anderson.  Today is the day I learn if my myeloma has indeed returned--if my M-spike is measurable for the first time in eighteen months.  Two months ago I received a report from Dr. Anderson

12 12, 2009

Wise Advise From Our Readers!

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One of my readers recently used this phrase in her comments: Be patient—be persistent—be positive!Don't you love that! I would add it to my regular sign-off line, but it is long enough already. Still, for today...Feel good, keep smiling and be patient—be persistent—be positive! Pat

23 11, 2009

Pattie’s Mother Died Today

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My wife Pattie's mother, Marie Doyle, died today from complications associated with her ten year battle against colon cancer. I just completed writing a long, personal post about this on my other blog, www.HelpWithCancer.Org. I hope you can read that post--I'm running out of energy tonight to say much more here. Even if it is

20 10, 2009

More About The "Technical Side"

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One of our readers, Jerry, just made an excellent comment about yesterday's post. He likes the technical info and feels he can always skim over results or numbers that don't interest him. Check out his comment and my response. I was trying to make two points. First, it takes most myeloma patients six months to

23 09, 2009

Florida, Here I come!

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As many of you know from reading our blogs, my wife Pattie and I recently moved to Florida. Or should I say my wife has moved to Florida. I spend two weeks of each month with her there. Then I spend the next two weeks here in Wisconsin. Pattie is an administrative assistant for several

17 09, 2009

Pomalidomide Often Works Even For Patients Using Thalidomide Or Revlimid

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Here is an encouraging study from Mayo Clinic using new drug pomalidomide. Pomolidomide is an analogue (similar to) thalidomide and lenalidomide (Revlimid). This is great news for those of use trying to avoid a stem cell transplant using novel chemotherapy agents like Thalomid, Revlimid or Velcade.Pomalidomide (CC4047) Plus Low-Dose Dexamethasone As Therapy for Relapsed Multiple

17 09, 2009

What Are Corticosteroids & Why Do Myeloma Patients Need Them?

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I wrote this post in July. Thought it was worth another look:The book, 100 Questions & Answers About Myeloma, gives an excellent lay-persons explanation of corticosteroids and how they work. Not familiar with the term? Prednisone and dexamethasone are both corticosteroids. Not to be confused with anabolic steroids often used by athletes, both prednisone and

13 09, 2009

Myeloma, Myeloma Everywhere!

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My neighbor at our home in Tampa, Florida has myeloma. The brother-in-law of the woman I sat next to on the flight back to Minnesota has myeloma. My mother's best friend has myeloma. Can it be true? Only 19,000 new cases of multiple myeloma are diagnosed each year in the United States, yet everywhere I

6 09, 2009

Remember That A Good Day Is Coming!

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I needed to help a family member and another myeloma patient this evening so I will keep this short and get back on track tomorrow. Jake, a member of my myeloma support group in Stillwater, Minnesota called me in Florida today to see how I was doing. Our conversation was brief, but memorable. When I

2 09, 2009

Interview With Dr. Durie- Part Three

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I have found over the years oncologists have been divided over maintenance therapy for multiple myeloma. Some feel as soon as the cancer is under control, stop. That way, when the cancer comes back, there is a chance the original chemotherapy may work again. The theory: Like other cancers, after it is exposed long enough

30 08, 2009

Keep Breathing & Enjoy The Sunset!

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I left the myeloma conference in the Twin Cities early today to catch my flight to Tampa. As usual, my flight was not non-stop. I am in the Charlotte, North Carolina airport and I don't have much time. But I wanted to share an exchange I had with a fellow passenger tonight. I sat next