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University of Iowa Cancer Center

Home/Tag:University of Iowa Cancer Center
17 12, 2015

I’M MYELOMA FREE!

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Looks like our highly toxic gamble to try a pair of salvage autologous stem cell transplants worked! I'm at the airport getting ready to board a plane to Atlanta on the way home, so no time to post details... Still, I quickly wanted to share the good news with so many that have been sympathetic

13 12, 2015

BMT Bondage

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I'm feeling a much better today. I was in such a dark place. Feverish and saddled with abdominal pain and now nine days of diarrhea, To be wheeled from ICU up to the BMT unit was discouraging beyond words. But as so many of reminded me with love and certainty, "It will get better!" Funny

11 12, 2015

I’m in the ICU

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I left Orlando Wednesday afternoon. Sorry that I didn't post Thursday, but I was too sick--and in too much pain to do anything but moan, groan and sleep. A was already in bad shape when I arrived in Detroit to catch my connecting flight to Iowa City for tests. Missed the tests, ended up in

17 05, 2015

Therapy karma catches up to me

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I understand some of you have endured difficult side effects while using Revlimid and/or Velcade.  Sure, walking around borderline neutropenic often left me feeling a bit fatigued.  But I was one of the lucky ones; except for later in the day of RVD therapy--which left me feeling wiped-out and fluish--Rev and Velcade were no big

11 05, 2015

Decision time: modified auto, allo or drug roulette? (Part One)

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I ended Saturday's post this way:  "I’ve had an epiphany.  I like the sound of  'in my future.'  This has been a game changing week for me, full of amazing coincidences, reaffirming phone calls–and signs.  Some 'signs' are too improbably to ignore." I've spend the last several months focused on which late stage myeloma therapy

27 03, 2015

Why can’t I get my doctors to step up and help me!

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Last night I had the opportunity to interview one of the busiest stem cell transplant experts in the United States: Dr. William Bensinger from Seattle.  I try not to ask personal medical questions during my interviews.  But now is not the time to stick to shy and stick to the script! My first two questions

11 03, 2015

Lessons learned: My 2nd opinion in Iowa (Part Three)

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My health care team is faced with a complicated dilemma.  On one hand, pomalidomide/dexamethasone therapy continues to whittle my numbers down; my M-spike has systematically dropped from 0.7 to 0.2 over a ten month period.   On the other hand, myeloma activity is steadily increasing in and around my bones.  Talk about mixed messages! Let's