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28 05, 2015

A few bad apples give Internet a bad name

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Ever since I as diagnosed I have heard a number of doctors and patients say, "DON'T LOOK UP MULITPLE MYELOMA ON THE INTERNET!"  I have always disagreed.  I find an amazing amount of helpful information there.  But you need to know where to look. For example, if you followed three sites; mine (MMB), The Myeloma

28 04, 2014

Multiple myeloma is so inconvenient!

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I've written before about how living with multiple myeloma is like having a part time job.  Want proof?  Check out my schedule for the upcoming week: Today I'll drive an hour down to Tampa for a blood draw, and to pick up 350 pages of medical records to take with me to Mayo Clinic on

12 07, 2013

I survived another “triple witching therapy hour!”

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What the heck is a "triple witching hour?" According to Mark Koba, Senior Business Editor for CNBC, "Witching hours occur when financial contracts—specifically options and futures—end on the third Friday of a month.  Traditionally, all contracts expire in the same hour—thus the name witching hour—usually the last hour of trading." And the end of the

14 12, 2012

Medical Update: How I’m doing post-ASH

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ASH is the largest hematological conference in the world.  More myeloma related research results are published and presented at ASH than at any other time.  But most of the information there isn't time sensitive.  As I may have already mentioned, I can see progress being made.  But in small, incremental steps.  So I'm going to

9 04, 2012

The crazy world of “myeloma research speak”

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Most of you probably know that I have been working on several new books about multiple myeloma.  My third book, New Myeloma Therapies from a Patient's Perspective, will be published and available by the end of this month.  Researching this book reminded me about how difficult it can be to understand "myeloma research speak."  It

28 02, 2012

New bone strengthening/anti-myeloma antibody begins Phase Two testing

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I have been following the progress of one of our patient readers who also lives in the Tampa area. Richard is getting ready to embark on an exciting ride:  He has been accepted into a clinical study which features an experimental monocolonal antibody called BHQ880. The study is designed to learn whether this newly developed

2 06, 2011

Novartis To Showcase Progress With Multiple Myeloma Related Drugs, Panobinostat And Zometa At ASCO Oncology Meetings Next Week

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One of the large pharmaceutical companies which focuses on multiple myeloma related meds, Novartis, will showcase data from 140 abstracts on its current oncology products and investigational agents at the 47th Annual Meeting of the American Society of Clinical Oncology (ASCO). I will be there to report on the progress of a number of different

2 05, 2011

Video Explaining How Bisphosphonates Help Strengthen Bones Of Myeloma Patients

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I flew out to Los Angeles late last fall to interview Dr. James Berenson at the Institute for Myeloma & Bone Cancer Research. Novartis Oncology paid for my time and travel.  The primary purpose of the trip was to produce a video for Novartis about their IV bisphosphonate drug, Zometa.  An independent company, WEGO Health,

1 03, 2011

New Webinar About Bone Health For Multiple Myeloma Survivors Available Online

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Yesterday I provided you with a link to a site on, where patients and/or caregivers can access video footage of other patients, all discussing how they live with their cancer. Today I would like to share a link to a webinar I conducted late last year with Dr. James Berenson in Los Angeles: Multiple Myeloma

13 12, 2010

Multiple Myeloma Research Foundation’s ASH Summary

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It is always interesting to see how each multiple myeloma related publication or organization views news coming out of a large conference like ASH.Here is a press release from the Multiple Myeloma Research Foundation (MMRF), sharing what they saw as most important:Greetings!The Multiple Myeloma Research Foundation (MMRF) team continues to report from the American Society of

11 12, 2010

Interesting News About Bisphosphonate Zometa: Unlike Multiple Myeloma Related Studies, Zometa Found To Offer No Anti-Breast Cancer Protection

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I follow an underground, counter-culture type medical blog called Medicynic.  Always good to get a different perspective, right?  Here is a link to a story I read there today:  Why We Need Comparative Medical Studies:  Zometa.The short post features several links back to reputable articles about how Zometa "did not appear to prevent breast cancer

5 12, 2010

Evidence Shows Zometa Features Anti-Myeloma Benefit For Patients. But How About Another Often Used Bisphosphonate, Aredia?

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This article from WebMD speaks for itself:Bone Drug May Help Treat Multiple MyelomaStudy Shows Zometa May Improve Survival for Patients With Multiple MyelomaBy Salynn BoylesWebMD Health NewsReviewed by Laura J. Martin, MD Dec. 3, 2010 -- Adding the intravenous bone drug Zometa to chemotherapy improves survival in patients with the blood cancer multiple myeloma, new

19 11, 2010

FDA Approves New Cancer Bone Drug, Denosumab (Xgeva), For Use In Patients With Solid Tumors – But Not Multiple Myeloma

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Hot "off the presses," here is yesterday afternoon's announcement from the FDA as reported by Reuters:FDA OKs Amgen's bone drug in certain cancersNov 18 2010 - By Deena Beasley* Denosumab approved for patients with solid tumors * Not approved for multiple myeloma* Shares rise 1.6 percent LOS ANGELES, Nov 18 (Reuters) - The U.S. Food